§ of studies, databases, and other resources related to dementia and aging (n=150), 2013 October

Table 1. Working Inventory^§ of studies, databases, and other resources related to dementia and aging (n=150), 2013 October
Study/Database/Project	Location	Is project still active* (Y/N)?	Study/database/resource type
A
Adult Changes in Thought (ACT)-Group Health Cooperative (GHC)	United States	Y	Longitudinal; Prospective
Adult Children Study (ACS), Memory Aging Project	United States	Y	Longitudinal; Prospective
Age-Related Neurodegenerative Diseases in Micronesia (ARNDM)/Guam Dementia Project: Parkinson's Dementia Complex (PDC) of the Chamorro on Guam	Guam	N (1997-2002)	Longitudinal; Prospective; Tissue samples
AgeNet (Aging Research Network)	Canada	Y	Collaborative; Education; Funds research
AGES Reykjavik Study: The Reykjavik Study of Healthy Aging for the New Millennium	Iceland; United States	N	Genetics
Aging Demographics and Memory Study (ADAMS), part of the Health and Retirement Study (HRS)	United States	N	Population-based
Alzheimer Disease & Frontotemporal Dementia Mutation Database (AD & FTDMDB)	Belgium	Y	Database; Genetics
Alzheimer Europe Network	Europe	Y	Collaborative; Information resource
Alzheimer's Disease Genetics Consortium (ADGC)	United States	Y	Collaborative; Genetics
Alzheimer's Disease Patient Registry (ADPR)	United States	Y	Database; Registry
Alzheimer's Diseases Without Borders (ADWIBO)	Italy	Y	Database
Alzheimer’s Disease Cooperative Study (ADCS)	United States	Y	Alzheimer's Disease Prevention Initiative; Clinical research; Drug discovery, development, and testing
Alzheimer’s Disease Neuroimaging Initiative (ADNI)	United States	Y	Collaborative; Longitudinal; Neuroimaging; Prospective; Database/Data sharing
Alzheimer’s Disease Research Centers (ADRC), 29 Centers	United States	Y	Basic, clinical, and behavioral research sites; Network; Collaborative Studies
Alzheimer’s Prevention Initiative (API)	United States	Y	Biomarkers; Clinical research; Drug discovery, development, and testing; Neuroimaging
Assessment of Health Economics in Alzheimer's Disease (AHEAD) Model	United States	N/A	Methods
Australian Imaging, Biomarker and Lifestyle Flagship Study of Ageing (AIBL) / Australian Initiative (COSMIC) - Australian ADNI	Australia	Y	Biomarkers; Collaborative; Longitudinal; Neuroimaging; Prospective; World Wide Alzheimer's Disease Neuroimaging Initiative (WW-ADNI)
The Alzheimer's Disease Genetics Initiative: The Multiplex Family Study	United States	Y	Clinical research; Genetics; Longitudinal
B
Baltimore Longitudinal Study on Aging (BLSA)	United States	Y	Longitudinal; Observational; Prospective
Barcelona-Pittsburgh Project	Spain; United States	Y	Alzheimer’s Education Center; Clinical; Collaborative; Longitudinal; Research Center
Biomarkers for Older Controls at Risk for Dementia (BIOCARD)	United States	Y	Biomarkers; Longitudinal; Neuroimaging
Bioresource Research Impact Factor (BRIF)	Europe	Y	Methods; Tool; Workgroup
Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative/Brain Activity Map Project	United States	Y	Collaborative; Neuroimaging; Technology
Bronx Aging Study (BAS)	United States	N	Longitudinal; Prospective
The Betula Project	Sweden	Y	Longitudinal; Prospective
C
Cache County Study on Memory Health and Aging (CCMS)	United States	N (1995-2012)	Longitudinal; Prospective
Cambridge Brain Bank (CBB)	United Kingdom	Y	Controls; Data repository; Human tissue
Canadian Longitudinal Study on Aging (CLSA)	Canada	Y	Longitudinal; Prospective
Canadian Study of Health and Aging (CSHA)	Canada	N (1991-2001)	Longitudinal; Prospective
Coronary Artery Risk Development in Young Adults (CARDIA)	United States	Y	Biomarker; Collaborative; Data sharing; Longitudinal; Prospective; Multicenter
Cardiovascular Health Cognition Study (CHCS)	United States	N (1989-1999)	Longitudinal; Population-based; Prospective
Cardiovascular Risk Factors, Aging and Dementia (CAIDE)	Finland	Y	Longitudinal; Prospective
Chicago Health and Aging Project (CHAP)	United States	Y	Longitudinal; Population-based; Prospective
China-ADNI	China	Y	Collaborative; Neuroimaging
Chongqing City, China cohort	China	N	Longitudinal; Prospective
Clinical Practice Research Datalink (CPRD)	United Kingdom	Y	Database; Intervention(s); Observational;
Cognition, Brain, and Aging (COBRA) Project	Sweden	Y	Longitudinal; Neuroimaging; Prospective
Cognitive and Emotional Health Project (CEHP): The Healthy Brain	United States	Y	Collaborative; Current Aging Research Status; Database;
Cognitive Assessment Toolbox (CAT)	United States	Y	Information resource; Tools
Cohorts for Heart and Aging in Genomic Epidemiology (CHARGE), neurology subgroup	United States	Y	Collaborative; Genetics
Conselice Study of Brain Aging (CSBA)	Italy	N	Population-based; Prevalence study
Consortium of Canadian Centers for Clinical Cognitive Research (C5R)	Canada	Y	Clinical research; Collaborative; Drug discovery, development, and testing
Consortium to Establish a Registry for Alzheimer’s Disease (CERAD)	United States	Y	Autopsy; Collaborative; Controls; Data standardization; Registry
D
Deep South Resource Center for Minority Aging Research	United States	Y	Career development; Collaborative; Funds research; Resource Center for Minority Aging Research (RCMAR)
Dementia Engagement and Empowerment Project (DEEP)	United Kingdom	Y	Collaborative; Support
Dementia in Swedish Twins (HARMONY)	Sweden; United States	Y	Collaborative; Longitudinal; Prospective
Development of Screening Guidelines & Criteria for Pre-dementia Alzheimer’s Disease (DESCRIPA)	Europe	N	Clinical criteria; Collaborative; Meta-analysis; Population-based; Prospective; Screening guidelines
Diagnostic Enhancement of Confidence by an International Distributed Environment (DECIDE)	Italy	N (2010-2012)	Diagnostics; Information resource; Tools
Dominantly Inherited Alzheimer Network (DIAN)	Australia; Germany; United Kingdom; United States	Y	Collaborative; Genetics
German Center for Neurodegenerative Diseases: Deutsche Zentrum Neurologische Erkagardin (DZNE)	Germany	Y	Clinical research; Health care; Population-based; Research center
E
Established Populations for Epidemiologic Studies of the Elderly (EPESE) - (East Boston, Iowa, New Haven, North Central North Carolina) / Hispanic EPESE	United States	N	Biomarkers; Longitudinal; Prospective
Eugeria Longitudinal Study of Cognitive Aging	France	N	Longitudinal; Prospective
European Alzheimer's Disease Consortium (EADC)	Europe	Y	Collaborative; Network
European Alzheimer's Disease Initiative (EADI)	Europe	Y	Collaborative; Genetics
European Community Concerted Action on the Epidemiology and Prevention of Dementia Group (EURODEM)	Europe	N	Collaborative; Research
European Dementia Prevention Initiative (EDPI)	Europe	Y	Collaborative; Dementia prevention trials
European Diffusion Tensor Imaging Study in Dementia (EDSD)	Europe	Y	Clinical research; Imaging; Multicenter; Technology
European Huntington’s Disease Network/CHDI/Huntington’s Disease Initiative	Europe	Y	Drug discovery, development, and testing; Funds research; Research organization
European Medical Information Framework (EMIF)	Europe	Y	Database
European Prospective Investigation into Cancer and Nutrition - Cognition Consortium (EPIC-COG)	Europe	Y	Biobank; Collaborative; Genetics; Longitudinal; Multicenter; Prospective
F
Finnish Geriatric Intervention Study to Prevent Cognitive Impairment and Disability (FINGER)	Sweden	Y	Intervention; Longitudinal; Multicenter; Prospective
Framingham Heart Study (Original cohort, offspring, omni generations 1 and 2, and generation 3)	United States	Y	Longitudinal; Prospective
French National Alzheimer Plan Cohort (MEMENTO)	France	Y	Multicenter; Prospective; Observational
G
Genetic and Environmental Risk Factors for Alzheimer Disease Among African Americans (GenerAAtions) Study	United States	N	Genetics; Longitudinal
Genetic and Environmental Risk in Alzheimer's disease (GERAD) Consortium	United Kingdom	Y	Collaborative; Genetics; International Genomics of Alzheimer's Project (IGAP)
German Study on Aging, Cognition and Dementia in Primary Care Patients (AgeCoDe)	Germany	Y	Longitudinal; Multicenter; Prospective
Global Alzheimer’s Association Interactive Network (GAAIN)	United States	Y	Collaborative; Data sharing
The German Dementia Competence Network	Germany	Y	Collaborative; Research support; Resource sharing
The Ginkgo Evaluation of Memory (GEM) Study	United States	N	Clinical research
H
Healthy Aging in Neighborhoods of Diversity across the Life Span (HANDLS)	United States	Y	Biomarkers; Longitudinal; Prospective
Healthy Aging Through Internet Counseling in the Elderly (HATICE)	Europe	Y	Collaborative; European Dementia Prevention Initiative (EDPI); Intervention; Randomized Controlled Trial; Technology
Dynamics of Health, Aging, and Body Composition (Health ABC) Study	United States	Y	Biomarker; Collaborative; Clinical research; Longitudinal; Observational; Prospective
H70	Sweden	N (1971-2012)	Longitudinal; Population-based; Prospective
HARMONY Study - The Study of Dementia in Swedish Twins	Sweden	Y	Longitudinal; Prospective; Registry
Health and Retirement Study (HRS)	United States	Y	Cross-sectional; Longitudinal panel
Healthy Aging and Senile Dementia (HASD)	United States	N	Longitudinal; Prospective
Hisayama Study	Japan	Y	Autopsy; Longitudinal; Prospective
Honolulu-Asia Aging Study (HAAS)/Honolulu Heart Program (HHP)	United States	N	Autopsy; Longitudinal; Prospective
Human Brain Project (HBP)	Europe	Y	Collaborative; Neuroinformatics; Technology
The Halcyon Project	United Kingdom	Y	Information resource
I
Indianapolis-Ibadan Dementia Project / Yoruba Nigerians	United States	Y	Longitudinal; Population-based; Prospective
Indo-US Cross-National Dementia Epidemiology Study	India; United States	N	Collaborative
Insight into Determinants of Exceptional Aging and Longevity (IDEAL) Study	United States	Y	Longitudinal; Prospective
Instruments to Detect Cognitive Impairment in Older Adults	United States	Y	Database; Information resource
Integrative Analysis of Longitudinal Studies on Aging (IALSA)	Canada	Y	Collaborative; International; Research network
Israel Diabetes and Cognitive Decline Study	Israel	N	Longitudinal; Neuroimaging; Prospective
Israeli Registry for Alzheimer’s Prevention (IRAP)	Israel	Y	Longitudinal; Observational; Prospective
Italian ADNI (I-ADNI)	Italy	Y	Collaborative; Neuroimaging; WW-ADNI
Italian Longitudinal Study on Ageing (ILSA)	Italy	N	Longitudinal; Population-based; Prospective
The InCHIANTI Study (Invecchiare in Chianti, aging in the Chianti area)	Italy	Y	Data sharing; Longitudinal; Population-based; Prospective
The International Genomics of Alzheimer's Project (IGAP)	Europe/EADI; United States/ADGC and CHARGE; United Kingdom/GERAD	Y	Collaborative; Genetics; International
K
Kaiser Permanente Medical Care Program of Northern California (KPNC)	United States	Y	Electronic medical records; Retrospective
Kame Project	United States	N (1990-2003)	Longitudinal; Prospective
Kungsholmen Project	Sweden	N (1987-2000)	Longitudinal; Prospective
L
Laboratory of Neuroimaging (LONI)	United States	Y	ADNI; Collaborative; Data sharing; Neuroimaging
Latino Aging Research Resource Center (LARRC)	United States	Y	Collaborative; Information resource; RCMAR
Leisure World Cohort Study (LWCS)	United States	Y	Longitudinal; Population-based; Prospective
Longitudinal Study of Drivers with Dementia	United States	N (2001-2005)	Longitudinal; Prospective
M
Manitoba Study of Health and Aging (MSHA)	Canada	N	Longitudinal; Population-based; Prospective
Mayo Clinic Study of Aging (MCSA)	United States	Y	Longitudinal; Population-based; Prospective
Memory and Aging Project (MAP) - at Rush University Medical Center ADC	United States	N	Longitudinal; Prospective
Memory and Aging Project (MAP) - at Washington University in St. Louis	United States	Y	Longitudinal; Prospective
Minority Aging Research Study	United States	Y	Longitudinal; Population-based; Prospective
Monongahela Valley Independent Elders Survey (MoVIES)	United States	N	Longitudinal; Population-based; Prospective
Monongahela-Youghiogheny Health and Aging Team (MYHAT) (aka Mild Cognitive Impairment: A Prospective Community Study)	United States	Y	Longitudinal; Population-based; Prospective
MultiDomain Alzheimer Preventive Trial (MAPT)	France	Y	Clinical research; Preventive research
Multi-Institutional Research on Alzheimer Genetic Epidemiology (MIRAGE) Study	United States	N	Clinical research; Genetics; Longitudinal
Multiple Risk Factors for Major Diseases (MRMD)	China	N	Longitudinal; Population-based; Prospective
N
National Alzheimer’s Coordinating Center (NACC)	United States	Y	Alzheimer's Disease Research Centers (ADCs); Collaborative; Data sharing; Longitudinal; Prospective
National Research Bank for Genetic Studies of Alzheimer’s Disease	United States	Y	Collaborative; Data sharing; Genetics
Naturalistic Assessment of the Driving Ability of Cognitively Impaired Elders	United States	N (2001-2011)	Longitudinal; Prospective
neuGRID	Europe	N (2008-2011)	Data sharing; Information resource; Neuroimaging
neuGRID for you (N4U)	Europe	Y	Data sharing; Information resource; Neuroimaging
Neurological Disorders in Central Spain (NEDICES Study)	Spain	N	Longitudinal; Population-based; Prospective
National Institute on Aging (NIA) Population Studies Database	United States	Y	Database; Population studies
North Karelia Project (NKP)/FINMONICA	Finland	N (1972-1992)	Intervention; Population-based
Nun Study of Aging and Alzheimer's Disease	United States	Y	Longitudinal; Prospective
Nurses’ Health Study/Nurses' Health Study II/Nurses' Health Study III	United States	Y (Nurses' Health Study III)	Biomarkers; Longitudinal; Prospective
New York University (NYU) Center for Brain Health - PET Study	United States	Y	Biomarkers; Longitudinal; Multicenter; Neuroimaging
The 90+ Study	United States	Y	Longitudinal; Prospective
The National Cell Repository for Alzheimer’s Disease (NCRAD)	United States	Y	Biological samples; Data resource/sharing; Genetics
O
Orange County Vital Aging Program (OCVAP)	United States	Y	Information resource; Tools
Oregon Brain Bank	United States	Y	Autopsy; Information Resource; Human tissue repository; Neuropathologic diagnosis
Origins of Variance in the Oldest-Old (OCTO-TWIN)	Sweden	Y	Longitudinal; Prospective; Registry
outGRID	Europe	N (2009-2011)	Collaborative; Data linkage; Data sharing; International; Neuroscience; Technology
P
Personnes Agées QUID (PAQUID) Cohort	France	N (1988-2003)	Longitudinal; Prospective
Predictors Study	United States	N	Multicenter; Prediction model; Prospective
Prevention of Dementia by Intensive Vascular Care (Pre-DIVA)	Netherlands	N (2006-2013)	Intervention; Randomized Controlled Trial
Prospective Population Study of Women in Goteborg (PPSW)	Sweden	N (1968-2011)	Longitudinal; Prospective
R
Religious Orders Study (ROS)	United States	Y	Brain tissue; Collaborative; Longitudinal; Multicenter; Prospective
Rochester Epidemiology Project (REP)	United States	Y	Collaborative; Longitudinal; Population-based; Record-linkage
Rotterdam Study	Netherlands	Y	Longitudinal; Population-based; Prospective
Royal College of Nursing (RCN) Dementia Project	United Kingdom	N	Dementia care provision; Guidelines
S
Sacramento Area Latino Study of Aging (SALSA)	United States	N (1996-2008)	Longitudinal; Prospective
SardiNIA	Italy; United States	N	Longitudinal; Population-based
Social Environment and Biomarkers of Aging Study (SEBAS)	China	N	Biomarker; Data sharing
Steel Valley Seniors Survey (SVSS)	United States	N	Clinical research; Longitudinal; Prospective
Swedish Brain Power (SBP) Research Network	Sweden	Y	Clinical research; Collaborative
Swedish Military Service Conscription Register Cohort	Sweden	N	Historical cohort
Swedish Twin Registry (STR)	Sweden	Y	Longitudinal; Prospective; Registry
The Swedish Adoption/Twin Study of Aging (SATSA)	Sweden	Y	Longitudinal; Prospective; Registry
The Swedish National Study on Aging and Care in Kungsholmen (SNAC/SNAC-K) Population Study	Sweden	Y	Longitudinal; Population-based; Prospective
T
Three-City (3C) study	France	N (1999-2012)	Longitudinal; Observational; Population-based; Prospective
U
Uppsala Longitudinal Study of Adult Men (ULSAM)	Sweden	Y	Longitudinal; Prospective
V
Vantaa 85+ study	Finland	Y	Longitudinal; Population-based; Prospective
W
Washington Heights-Inwood Columbia Aging Project (WHICAP)	United States	Y	Longitudinal; Neuroimaging; Prospective
Wisconsin Registry for Alzheimer’s Prevention (WRAP)	United States	Y	Longitudinal; Observational; Prospective
Women's Health Initiative Study of Cognitive Aging (WHISCA) - Women's Health Initiative (WHI) and WHI Memory Study (WHIMS)	United States	N	Clinical research
Women's Health and Aging (WHA) Study	United States	Y	Longitudinal; Prospective
World War II Navy and Marine veterans	United States	N	Population-based prospective historical cohort (men only)
^§This table is a work-in-progress. We hope that it will generate discussion and collaboration. Alzheimer’s & Dementia solicits suggestions from the wider scientific community of any additional entries for the final version of this inventory, as well as assistance to ensure presented information is accurate. *For this table, we define “active” as project data presently being analyzed, published, and/or shared, even if data collection has been completed.