Copyright 2012 The Charles E. Holman Foundation, All Rights Reserved What is Morgellons Disease?
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Copyright © 2012 The Charles E. Holman Foundation, All Rights Reserved What is Morgellons Disease? Morgellons Disease is a multi-system condition characterized by novel skin manifestations and insidious neurological and other systemic symptoms. The distinguishing characteristic of Morgellons Disease (MD) is the presence of microscopic subcutaneous fibers sometimes referred to as filaments within the skin. Lighted microscopy (60x minimum) enables the visualization of these unusual fibers, often colored red, blue, white or clear, embedded in open skin lesions as well as their presence beneath completely intact skin. Is Morgellons Disease Contagious? Researchers have determined, thus far, that MD does not seem to be easily transmitted via casual contact. One Individual in a family can experience symptoms of the disease while other members remain unaffected. Who Suffers From Morgellons? Adults, children, and pets have been reported to have Morgellons Disease. Is this a Parasite? Laboratory analyses (including DNA) of MD specimens has not identified parasites, insects, mold or fungus to be a causative agent of this condition. What About Research? Medical research started in earnest in 2005 at OK State University in Tulsa under the direction of Dr. Randy S. Wymore, PhD. Progress began moving forward for MD patients in 2011 when Marianne Middelveen, a Canadian veterinary microbiologist, noted striking similarities between Morgellons Disease and BDD, a cattle disease caused by a spirochetal infection. With funding from The CEHF, Ms. Middelveen joined forces with R. Stricker, MD, a pioneer in Morgellons research. Ground-breaking investigative research has continued to produce promising results, clearly establishing a physiological not psychological basis for MD and being honored with a citation from The Faculty of 1000. These peer reviewed publications are available on our web site Research page. What are the symptoms of Morgellons Disease? » Intense itching » Crawling sensations under the skin » Spontaneously–appearing, slow-healing lesions » Seed-like objects/ granules and black specks on/in skin » “Fuzz balls” on/in intact skin » Fine, thread like fibers beneath and/or extruding from the skin » Fatigue » Neurological impairment » Brain fog and diminished higher cognitive abilities » GI changes » Muscle aches, Joint pain » Sleep disturbances » New onset of panic or anxiety
What About the Diagnosis of Delusions of Parasitosis (DOP)? Unfortunately, many doctors, including Dermatologists and Infectious Disease Specialists are grossly unaware of the legitimacy of Morgellons Disease. Generally, little to no assessment of the patient is done, yet they render a diagnosis of Delusions of Parasitosis (DOP). Lab testing and/ or biopsies, if done at all, typically misidentify MD fibers as textile contamination or are misinterpreted to imply patients have caused their physical symptoms. According to the guidelines set forth in the Diagnostic and Statistical Manual of Mental Disorders (DSM- IV-TR), the diagnosis of DOP should not be rendered until a thorough examination and assessment of the patient has been conducted and ALL OTHER MEDICAL CAUSES HAVE BEEN RULED OUT. Delusional disorders are diagnoses of exclusion. Surprising facts worth mentioning:
MD symptoms DO NOT respond to antipsychotic Rx.
Health care providers are bewildered as to how to treat MD.
Antibiotics seem to help some patients, but if they are stopped the symptoms come back.
Disease? Physicians and patients are both bewildered about medical management of MD. Thus far, some Family Practitioners have tried to help patients. However, since 97% of MD patients have evidence of co- existing Lyme disease, Lyme Specialists (LLMDs), mainly have taken Morgellons seriously. Only When research provides answers, will doctors be able to properly treat MD. For more information about Morgellons disease: www.thecehf.org http://healthsciences.okstate.edu/morgellons For more information about Lyme disease : www.lymediseaseassociation.org www.ilads.org Scarring, lesions & pigment changes seen in Caucasian female with MD for 10 + yrs MD fibers Visualized at 60x – 100x Within skin of same patient Clinical Presentation of Morgellons Disease Copyright © 2012 The Charles E. Ho
integral role in spreading the understanding of Morgellons Disease to others.” - Charles “Chas” Holman
The
Charles E. Holman Foundation 501 (c) 3 non-profit P.O. Box 92674 Austin, Texas 78709
THE National Organization with Global Outreach... An all-volunteer organization... 501 (c) 3 non-profit and donations are tax deductible … Advocator/ proponent for scientific research, education, diagnosis and treatment of Morgellons Disease.
In 2004 Charles and Cindy (Casey) Holman were determined to find answers about an unusual and debilitating condition, Morgellons Disease (MD) which Cindy was dealing with. The New Morgellons Order was founded with strong commitments to honesty and integrity. The goals were and remain directed towards funding scientific research, promoting public awareness and educating the medical community through factual information with scientific merit. Officially receiving the status of 501(c) 3 non-profit in 2006, the organization's name was amended with the IRS in 2007 under "doing business as" to include The Charles E. Holman Foundation to honor our founder for the work he had begun. Charles passed away in 2007 from heart related issues and did not have MD. Cindy Casey-Holman, RN serves as the Director of The CEHF continuing to lead the fight for Morgellons patients everywhere. The Charles E. Holman Foundation P.O. Box 92674 Austin, Texas 78709 www.thecehf.org Donation
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