Integrating palliative care and symptom relief
into primary health care
32
PHC practitioners who staff CHCs and district hospitals should have basic palliative care training that
enables them to provide basic palliative care as part of their standard responsibilities. If possible, at least
the leader of the palliative care team at district hospitals should have intermediate-level training. This
would enable the team leader to serve as a resource for clinicians at CHCs in need of consultation about
palliative care problems.
Palliative care tasks in PHC
PHC, as per the Declaration of Alma-Ata, should be responsive to local needs, accessible, comprehensive,
coordinated and continuous
(58). To integrate palliative care into PHC, palliative care services should:
n
be designed based on local needs and values;
n
be accessible where the patients are and want to be, including in their homes;
n
provide comprehensive prevention and relief of suffering of any kind: physical, psychological, social or
spiritual;
n
be coordinated with other tasks of
PHC such as health promotion, disease prevention, disease-
modifying or rehabilitative treatment; and
n
be provided by clinicians who know the patient and family and who accompany the patient throughout
the course of illness.
Palliative care needs are not the same in all places
(25); however, any given patient may experience any
type of suffering
(59,60). In post-conflict settings, the need for mental health care may be especially
great. Ideally, palliative care should be part of a system of seamlessly integrated illness prevention, early
detection, treatment and rehabilitation. Ideally, PHC provides all of these services for people whose needs
are uncomplicated and provides prompt referrals with secure transfer of health information and reasonable
transport for patients with more complex problems.
Primary care clinicians play a crucial role in recognizing palliative care needs, including
uncontrolled
physical or psychological symptoms, social distress, and in identifying people approaching the end of life
(61). In many low-income settings, patients may not complain of problems such as pain, anxiety or lack of
food because they think nothing can be done about them. Early identification of palliative care needs by
primary care providers has been found to depend on
(62):
n
clinicians’ knowledge, skills and communication styles;
n
patients’ communication styles;
n
quality of the clinician–patient relationship;
n
patient’s perceptions of the clinician’s role;
n
level of collaboration between the primary care clinician and other clinicians; and
n
patient’s fears and beliefs about the prognosis.
Skill in identifying palliative care need is crucial
for primary care providers, and tools for this purpose are
available. Once the need is identified, appropriate assessment and intervention can follow
(61).
In integrating palliative care into PHC there is a risk of overwhelming already overburdened primary care
clinicians with yet another responsibility and set of tasks
(63). To avoid this, adequate funding is required
33
A WHO guide for planners, implementers and managers
to employ an adequate number of primary care staff and thereby to strengthen the PHC system. In light of
the evidence that palliative care services that include home care can reduce costs for health care systems,
there are medical, ethical and financial arguments for integrating palliative
care into primary care
(1,7).
Another risk is that sending patients home to receive palliative care can overburden family caregivers.
Caring for disabled or seriously ill patients often is extremely demanding physically, mentally and
financially
(32,64). Training family members in basic nursing skills may help to reduce their stress, but
the home situation should be carefully assessed to make sure that the well-being of family caregivers is
not jeopardized by the patient’s presence at home. An alternative would be for terminally patients whose
symptoms are well controlled but whose families cannot care for them at home to be allowed to receive
end-of-life care at a CHC that is staffed around the clock. This would enable family to visit without having
the burden of providing 24-hour care and would be less expensive than having the patient in a hospital.
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