Appendix 2: Full list of carer outcome measures extracted Category of measure



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Appendix 2: Full list of carer outcome measures extracted

Category of measure

Instrument

# of studies

% of studies

Earliest date

Latest date

Burden


Zarit Burden Interview

76

21.1%

1994

2012

Revised Memory and Behavior Problems Checklist (RMBPC)

44

12.2%

1994

2012

Unspecified burden, behavioural problems and affect measure

37

10.2%

-

-

Relatives Stress Scale

13

3.6%

1998

2011

Novak Caregiver Burden Inventory

11

3.0%

2005

2011

Perceived Stress Scale

11

3.0%

1996

2010

Screen for Caregiver burden

11

3.0%

2000

2009

(Revised) Caregiver Burden Scale

6

1.7%

1991

2009

Caregiver Stress Scale

4

1.1%

2003

2007

Lawton Caregiver Appraisal Measure

3

0.8%

1999

2010

Unspecified stress measure

3

0.8%

-

-

Bradburn Affect Scale

2

0.6%

1989

2003

Burden Scale for Family caregivers (Grassel)

2

0.6%

2009

2010

Carer Strain Index

2

0.6%

2003

2006

Decisional Conflict scale

2

0.6%

2005

2011

Family Caregiver Conflict scale

2

0.6%

2010

2011

Gilleard Strain Scale

2

0.6%

1999

2002

Modified Conflict Tactics Scale

2

0.6%

2006

2010

Nursing home hassles scale

2

0.6%

2007

2011

Apparent Affect rating scale

1

0.3%

2009

2009

Behavior Management Scale–Revised

1

0.3%

2007

2007

Burnout Measure

1

0.3%

1994

1994

Caregiver Assessment of Functional Dependence and Caregiver Upset

1

0.3%

2003

2003

Caregiver Bathing Behavior Rating Scale

1

0.3%

2006

2006

Caregiver Burden caused by Behavioral and Psychological Symptoms of Dementia (CBBD)

1

0.3%

2007

2007

Caregiver Strain (Rose)

1

0.3%

2003

2003

Caregiver stress inventory

1

0.3%

2011

2011

Caregiving Hassle Scale

1

0.3%

2001

2001

Carers Assessment of Difficulties Index (CADI)

1

0.3%

2008

2008

Cook-Medley Hostility Scale

1

0.3%

2010

2010

Hassles During Bathing Scale

1

0.3%

2006

2006

Home Care scale

1

0.3%

2005

2005

Interpersonal Conflict Scale

1

0.3%

2007

2007

Minimum Data Set for Home Care (MDS-HC)

1

0.3%

2008

2008

Montgomery Borgotta Caregiver Burden scale

1

0.3%

2011

2011

Multiple Affect Adjective Checklist (MAACL) Hostility and Depression subscales

1

0.3%

2003

2003

Negative Reactions to Care Recipient Behaviour (Kinney)

1

0.3%

2011

2011

NIVEL Scale for Perceived Problems in Dementia Care (NSPP-DC)

1

0.3%

2005

2005

NIVEL Scale for Perceived Problems with Specific Behaviors of patients with dementia (NSPP-SB)

1

0.3%

2005

2005

Organization and Stress Scale

1

0.3%

2005

2005

Philadelphia Geriatric Centre Affect Rating Scale

1

0.3%

2008

2008

Spielberger State-Trait Anger Inventory

1

0.3%

2010

2010

Strains in Nursing Care scale

1

0.3%

2007

2007

Stress Appraisal Measure

1

0.3%

2005

2005

Whitlatch Burden Interview

1

0.3%

2003

2003

Zarit stress scale

1

0.3%

1999

1999

Mastery


Unspecified self-efficacy and coping measure

22

6.1%

-

-

Unspecified knowledge and mastery measure

20

5.5%

-

-

Unspecified intervention satisfaction measure

17

4.7%

-

-

Sense of Competence Questionnaire

12

3.3%

2000

2011

Brief Coping Orientation for Problems Experienced (COPE)

6

1.7%

2006

2011

Revised Scale for Caregiving Self Efficacy

6

1.7%

2003

2011

Ways of coping scale

6

1.7%

1999

2007

Unspecified confidence and self-esteem measure

5

1.4%

-

-

Alzheimer’s Disease Caregiver Preference Questionnaire

3

0.8%

2007

2011

Alzheimer's Disease Knowledge Test

3

0.8%

1994

2008

Beliefs about Caregiving Scale

3

0.8%

2001

2005

Caregiver self-efficacy (Pearlin)

3

0.8%

1997

2012

Carers' Assessment of Managing Index

2

0.6%

2005

2011

General self-efficacy scale

2

0.6%

2005

2010

Jalowiec Coping Scale

2

0.6%

2005

2006

Philadelphia Geriatric Center Caregiving Appraisal Scale

2

0.6%

2002

2009

Symptom Management

2

0.6%

2009

2009

Task Management Strategy Index

2

0.6%

2003

2008

Agitation Management Self-efficacy Scale

1

0.3%

2003

2003

Care Effectiveness Scale

1

0.3%

2006

2006

Caregiving Mastery Index

1

0.3%

2003

2003

Carers of Older People in Europe Index (COPE-Index)

1

0.3%

2011

2011

Coping Resources Inventory

1

0.3%

2004

2004

Coping Responses Inventory

1

0.3%

2010

2010

Coping Strategies Inventory-Revised

1

0.3%

2000

2000

Dementia Management Strategies Scale

1

0.3%

2008

2008

Environmental Mastery scale

1

0.3%

2010

2010

Expectation of Benefit Index

1

0.3%

2011

2011

Geriatric Center Morale Scale

1

0.3%

2000

2000

Goal Attainment Scale

1

0.3%

2011

2011

Health Specific Family Coping Index

1

0.3%

1989

1989

Indices of coping

1

0.3%

1999

1999

Inventory of Geriatric Nursing Self-Efficacy

1

0.3%

2003

2003

Knowledge of Alzheimer's Test

1

0.3%

1999

1999

Knowledge of Services scale

1

0.3%

2011

2011

Life-Events and difficulties

1

0.3%

2003

2003

Locus of Control Scale

1

0.3%

2006

2006

MacArthur Competency Assessment Tool for Clinical Research (MacCAT-CR)

1

0.3%

2006

2006

Management of meaning (Pearlin)

1

0.3%

2010

2010

Penn State Health Care-giving Questionnaire

1

0.3%

2009

2009

Planning for Future Care Needs scale

1

0.3%

2011

2011

Preparedness for Caregiving scale

1

0.3%

2011

2011

Psychosocial Adjustment to Relatives Illness scale

1

0.3%

1999

1999

Saunders and Courtney confidence-in-decision making

1

0.3%

1995

1995

Steinmetz Control Scale

1

0.3%

2003

2003

The Self-Efficacy of Dementia Care

1

0.3%

2007

2007

Therapeutic engagement index

1

0.3%

2003

2003
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