Medlineplus and Consumer Health Initiatives at nlm/nih october 20, 2000
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MEDLINEplus and Consumer Health Initiatives at NLM/NIH October 20, 2000 of the Medical Library Association Adam Glazer, Reference Librarian National Library of Medicine Overview MEDLINEplus NLM Gateway ClinicalTrials.gov AgePage Electronic Health Information Projects HEALTH INFOQUESTConsumer Health: An Online Manual The Public Library and Consumer Health: Meeting Community Needs Through Resource Identification and Collaboration MEDLINEplus History and development Components and technology Content arrangement, selection guidelines Future plans October 22, 1998 Public Library pilot project 22 health topics Where did the topics come from? MeSH Planetree Consumer health Web sites User searches 116,000 hits first month October 22, 1998 - September 21, 1999
September 22, 1999 - August 23, 2000
August 24, 2000 - present
MEDLINEplus Today Comprehensive health resource 414 topics (diseases, wellness issues) Links to organizations, libraries, directories Drug information Encyclopedia Over 2.5 million page hits/month Major Components Health Topic pages Links - full text on NIH and other sites Prepackaged MEDLINE searches ClinicalTrials.gov linksDrug information via USP DI® Medical encyclopedia via adam.com Technology Database of records (Oracle) Includes information on sites and contacts Over 13,000 records Web-based input system (Cold Fusion) Authorities and rules Review and approval process HTML generated nightly for Web Quality Checks Broken links fixed nightly Pages reviewed before release to public Pages reviewed after release MEDLINEplus Strengths User-driven topics User-driven design NIH collaborations Authoritative information Private Semi-annual topic evaluation Nightly link checking Selective, not comprehensive resource Content Arrangement Multiple access points (A-Z, categories) Topic pages have table of contents arrangement; point to full text information Prepackaged MEDLINE searches using PubMed Links to ClinicalTrials.gov Selection Issues Abundant health information on the Web Not always authoritative Often with agenda Nature of Web sites: constant change Selection Guidelines Linked from “About MEDLINEplus ” Emphasis on resources from government health organizations, especially NIH Institutes Collaborate with NIH Institutes on content development and review Selection Guidelines (2) Must be authoritative, accurate and well maintained Educational, not selling product NLM contacts organizations about displaying advisory boards technical issues (frames) NIH Collaboration Focus on NIH information Information Officers and staff Organizations Sites Topics and arrangement 30 Most Requested September 2000 (1-15) Diabetes Shingles Fibromyalgia AIDS Skin Diseases Breast Cancer Foot/ankle Injuries Thyroid Diseases Multiple Sclerosis 30 Most Requested September 2000 (16-30) Arthritis Depression Heart Diseases Anemia About Your Medications Spinal Stenosis Mouth & Throat Disorders MEDLINE Searches “Canned” searches created by NLM Reference Staff Current, English, clinical 20-70 references Cover selected aspects of topic Search PubMed each time Canned PubMed Search
ClinicalTrials.gov LinksIntroduced - February 2000 Mutual links through MeSH Online Tour Released September 13th
Frequently Asked Questions Released September 13th
Feedback and Evaluation Customer Service (phone, E-mail) Comment link on every page Comments - Jan - Sep 2000 N=1195
“I am very impressed with your website. The layout is very clear and easy to navigate... Now that I have visited, I will surely return. Many thanks to you and your staff for the creation of a truly worthwhile site.” (9/21/00) Recent Comments “Your information has been very helpful to my wife and I and we want you to know we greatly appreciate it. Thank You!!!” (9/18/00) Recent Comments “I wanted to tell you what a wonderful web site you have created and continue to develop. You have helped me, my students and our patients/families more than you might know… I wish there was a way to better thank you.” (9/3/00) Experience to Date Over 13,000 records in system Over 1000 organizations Over 100 organizations contacted Sites change Hard to keep up Future Health news Patient education modules AgePage (National Institute on Aging) Additional drug information Share links with local / regional Web sites Full News Story
Topic with News
Summarizing MEDLINEplus ... MEDLINEplus is: Selective Highly reviewed Private Responsive Growing NLM Gateway http://gateway.nlm.nih.gov/
ClinicalTrials.gov http://clinicaltrials.gov/AgePage Cooperative effort between the National Library of Medicine and the National Institute on Aging Reflects NLM’s efforts of reaching out to special populations Electronic Health Information Projects Announced in January 2000 Projects will run from 12 to 18 months More than $1 million invested Projects target people who lack access to computers and computer skills Originally involved 49 projects; four more were recently added http://www.nlm.nih.gov/news/press_releases/ehip.html
http://www.nlm.nih.gov/nno/hipprojects.html
http://www.nlm.nih.gov/news/hipprojects2.html
JAMA 2000 Apr 5;283(13):1675-6.
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